20.500.12556/RUL-160488 Družinska oskrba: izkušnje, izzivi in potrebe družinskih oskrbovalcev diplomsko delo Family Caregiving: Experiences, challenges and needs of family caregivers diplomsko delo Družinska oskrba je ključni element pri oskrbi bolnika, saj zagotavlja podporo in nego znotraj domačega okolja. Družinski oskrbovalci prevzamejo številne odgovornosti, vključno s fizično nego, čustveno podporo ter organizacijo in koordinacijo zdravstvenih storitev, poleg tega pa se pogosto soočajo tudi z izzivi, kot so fizična in psihična izčrpanost, finančne obremenitve in pomanjkanje formalne podpore. Zaradi teh izzivov je pomembno, da se zanje zagotovi ustrezna pomoč, saj se tako lahko izboljša kakovost oskrbe in življenjsko zadovoljstvo tako bolnikov kot oskrbovalcev. V okviru raziskave sem se osredotočila na razumevanje potreb družinskih oskrbovalcev, kar je relevantna tema za socialno delo, saj nam pomaga razumeti življenjski svet oskrbovalcev. Potrebe vključujejo stanovanje, delo, denar, vsakdanje življenje, stike, družabnost in institucionalno kariero. Nato sem raziskala seznanjenost in prilagojenost oblik pomoči tako za bolnike kot za oskrbovalce. Večjo pozornost sem namenila izkušnjam s paliativno oskrbo, ključna tema pa je bila raziskovanje doživljanja vloge oskrbovalcev. Pri tej tematiki sem ugotavljala, kako so potekali pomoč bolniku, delež pomoči, ki so ga opravljali sorodniki, ter usklajevanje med skrbjo za družino, delovnimi obveznostmi in oskrbo umirajočega družinskega člana. V raziskavi so me zanimale tudi teme: odnos do smrti v družini, skupnosti in družbi ter kakšne so obremenitve in izzivi, ki so jih doživljali oskrbovalci in bolniki. Izvedla sem kvalitativno empirično eksplorativno raziskavo, v kateri sem s pomočjo intervjujev z osmimi oskrbovalkami pridobila dragocene podatke o njihovih izkušnjah z izvajanjem neformalne oskrbe. Intervjuji so razkrili tako popolnoma različne kot tudi zelo podobne izkušnje oskrbovalk. Skupno vsem je bilo boleče obdobje oskrbe, ki je vključevalo fizično in psihično obremenitev ter občutek osamljenosti zaradi pomanjkanja podpore s strani zdravstvenega sistema. Poleg tega se oskrbovalci strinjajo o potrebi po usposabljanju, ki bi jim omogočilo boljše izvajanje njihove vloge in izboljšalo kakovost oskrbe. Bolniki so večino časa preživljali doma in počivali, saj jim stanje bolezni ni omogočalo večjih aktivnosti. Neformalni oskrbovalci so skrbeli za osebno nego bolnika, zdravje, nakupovanje hrane in zdravil, pripravo obrokov, hišna opravila ter za družino in hišne ljubljenčke. Tisti neformalni oskrbovalci, ki so bili že upokojeni, so lažje usklajevali delo ter skrb za družino in bolnike, medtem ko so drugi potrebovali pomoč družine. Tisti, ki so sodelovali z dr. Lopuh, so bili zelo zadovoljni s paliativno oskrbo, saj so z njene strani dobili vse tisto, kar so potrebovali. Family care is a crucial component in patient care, as it provides support and care within the home environment. Family caregivers assume numerous responsibilities, including physical care, emotional support, and the organization and coordination of healthcare services. Family caregivers often face challenges such as physical and emotional exhaustion, financial burdens, and a lack of formal support. Due to these challenges, it is important to provide appropriate assistance for family caregivers to improve the quality of care and the life satisfaction. My research focused on understanding the needs of family carers, which is a relevant topic for social work, as it helps us to understand the lifeworld of carers. These needs include housing, employment and financial security, daily life, social interactions, and institutional careers. I also explored the awareness and adaptability of support systems for both patients and caregivers, with particular attention given to experiences with palliative care. A key theme was exploring caregivers’experiences in their roles, investigating how assistance to the patient was provided, the share of help offered by relatives, and the coordination of family care, work obligations, and care for a dying family member. I was also interested in attitudes towards death within the family, the community, and society, as well as the burdens and challenges experienced by caregivers and patients. I conducted a qualitative, empirical exploratory study, collecting valuable data on their experiences through interviews with eight caregivers. The interviews revealed both completely different and very similar experiences among the caregivers. Common to all was the painful caregiving period, which included physical and emotional burdens and feelings of loneliness due to a lack of support from the healthcare system. Furthermore, all caregivers agreed on the need for training that would enable them to better perform their roles and improve the quality of care. Patients spent most of their time at home and rested, as their illness did not allow for more extensive activities. Informal caregivers took care of the patient's personal hygiene, health, food and medicine shopping, meal preparation, household chores, and care for the family and pets. Those informal caregivers who were already retired found it easier to balance work, family, and patient care, while others required help from their families. Those who worked with Dr. Lopuh were very satisfied with the palliative care, reporting that they received everything they needed. družinska oskrba paliativna oskrba odnos do smrti socialno delo family care palliative care attitude towards death social work true false false [A. Tama] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2024-08-29 09:00:10 2024-08-29 09:00:14 2025-05-16 13:49:06 0000-00-00 00:00:00 2024 0 Ljubljana 0 Ljubljana 139 str. 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 364-47 45682 236201219 14023.pdf 14023.pdf 1 034EA8E6C6FC7F31A72C0EB24E93D47D 3a7749ecbb258768b1c35012ac1745eac3f3f4b025d53cee44adfdf387723d44 1c8fae53-65d4-11ef-8f74-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=189191 Fakulteta za socialno delo 0 0 0