Vpliv kronične vnetne črevesne bolezni na zanositev, potek nosečnosti, porod in poporodno obdobje - slovenski podatki : diplomsko delo

Pirc, Anja (avtor), Prelec, Anita (mentor), Fabjan-Vodušek, Vesna (komentor), Lučovnik, Miha (recenzent)

Uvod: Kronična vnetna črevesna bolezen je kronično obolenje prebavne cevi, ki jo v grobem delimo na ulcerozni kolitis in Crohnovo bolezen. Incidenca bolezni zaradi različnih vzrokov v zadnjih letih raste. Najpogosteje zbolijo mladi med 20. in 30. letom starosti. Posledično njeni zapleti prizadenejo tudi ženske v rodnem obdobju. Ženske se kljub napredovanju medicine še vedno soočajo s skrbmi in strahovi glede zanositve, nosečnosti, poroda in poporodnega obdobja. Mnoge med njimi zato odlašajo z nosečnostjo ali pa se zavestno odločijo in nimajo otrok. Namen: Namen diplomskega dela je ozavestiti strokovno javnost o strahovih in skrbeh, s katerimi se soočajo ženske v Sloveniji s kronično vnetno črevesno boleznijo v času načrtovanja družine in nosečnosti. Metode dela: Diplomsko delo je sestavljeno iz dveh delov. V prvem delu smo uporabili deskriptivno metodo dela s pregledom strokovne in znanstvene literature. Vire smo poiskali v podatkovnih bazah PubMed, Medline, Google Schoolar, ScienceDirect in dLib. V drugem delu smo izvedli kvantitativno raziskavo o vplivu kronične vnetne črevesne bolezni na zanositev, nosečnost, porod in poporodno obdobje. Raziskava je temeljila na anketnem vprašalniku, dostopnem na spletnem portalu 1KA, ter pregledu podatkov iz Nacionalnega perinatalnega informacijskega sistema. Sodelovanje pri raziskavi je bilo prostovoljno in anonimno. Ciljna populacija so bile ženske, stare nad 18 let, z diagnozo kronične vnetne črevesne bolezni. Vprašalnik je bil preko Društva za kronično vnetno črevesno bolezen posredovan njihovim članicam. Podatki so bili statistično obdelani s Hi-kvadrat in t-testom ter regresijsko analizo. Rezultati: Reševanje vprašalnika je bilo omogočeno od 6. marca do 17. aprila 2024. Anketo je ustrezno rešilo 26 udeleženk. Največ anketirank je pripadalo starostni skupini med 26 in 35 let. Več kot tretjina jih ima doseženo univerzitetno izobrazbo. Več kot polovica anketirank ima diagnosticirano Crohnovo bolezen. V času načrtovanja družine najbolj skrbi neplodnost ter vpliv bolezni in predpisane terapije na razvoj ploda ter neželeni učinki le-te. Za najbolj pogost vir informacij so navedle pogovor z ginekologom in gastroenterologom. V času priprave na porod bi se najpogosteje obrnile na diplomirano babico. Razprava in zaključek: Pregled literature in raziskava sta pokazali, da se ženske v času načrtovanja družine in med nosečnostjo soočajo s strahovi in skrbmi, povezanimi predvsem z zdravjem njihovih otrok. Nekatere se zato kljub informiranju in dokazani varnosti zdravil zavestno odločijo za prekinitev zdravljenja. Na tem mestu imajo pomembno vlogo zdravstveni delavci, ki ženskam omogočijo kakovostno zdravstveno obravnavo in edukacijo s strokovnimi informacijami, s katerimi se bodo lahko odločile za dobrobit sebe in svojega otroka.

• Jezik: Slovenski jezik
• Ključne besede: diplomska dela, babištvo, Crohnova bolezen, ulcerozni kolitis, nosečnost, neonatalni izidi, porod, dojenje
• Vrsta gradiva: Diplomsko delo/naloga
• Tipologija: 2.11 - Diplomsko delo
• Organizacija: ZF - Zdravstvena fakulteta
• Kraj izida: Ljubljana
• Založnik: [A. Pirc]
• Leto izida: 2024
• Št. strani: 31 str., [11] str. pril.
• PID: 20.500.12556/RUL-163074
• UDK: 618.2/.7
• COBISS.SI-ID: 209971459
• Datum objave v RUL: 02.10.2024

PIRC, Anja, 2024, Vpliv kronične vnetne črevesne bolezni na zanositev, potek nosečnosti, porod in poporodno obdobje - slovenski podatki : diplomsko delo [na spletu]. Diplomsko delo. Ljubljana : A. Pirc. [Dostopano 21 april 2025]. Pridobljeno s: https://repozitorij.uni-lj.si/IzpisGradiva.php?lang=slv&id=163074

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: The influence of chronic inflammatory bowel disease on conception, the course of pregnancy, childbirth and the postpartum period – Slovenian data : diploma work

Izvleček

Introduction: Chronic inflammatory bowel disease is a chronic disease of the digestive tract, roughly divided into ulcerative colitis and Crohn's disease. The incidence of the disease has been increasing in recent years due to various causes. The young people, between 20 and 30 years of age, are the most affected. As a consequence, its complications also affect women in their childbearing years. Despite advances in medicine, women still face worries and fears about conception, pregnancy, childbirth and the postnatal period. Many of them therefore delay pregnancy or make a conscious decision not to have children. Purpose: The aim of diploma thesis is to raise awareness among professionals about the fears and concerns that women in Slovenia with chronic inflammatory bowel disease face during family planning and pregnancy. Methods: The diploma thesis consists of two parts. In the first part we used a descriptive method of work, with a review of professional and scientific literature. We searched for sources in PubMed, Medline, Google Schoolar, Science Direct and dLib databases. In the second part, we conducted a quantitative method of diploma work about the impact of chronic inflammatory bowel disease on conception, pregnancy, childbirth and the postpartum period. The survey was based on a questionnaire available on the 1KA web portal and a review of data from the National Perinatal Information System. Participation in the survey was voluntary and anonymous. The target population was women aged 18 years and over with a diagnosis of the Chronic inflammatory bowel disease. The questionnaire was distributed to the members of the Chronic Inflammatory Bowel Disease Association. The data were statistically analysed by Hi-square, T-test and regression analysis. Results: The questionnaire was open from 6 March to 17 April 2024 and was fully completed by 26 participants. The majority of respondents belonged to the age group between 26 and 35 years. More than a third of them have an university degree. More than half of the respondents have a diagnosis of Crohn's disease. Infertility and the impact of the disease and the prescribed treatment on fetal development and its side effects are the main concerns at the time of family planning. The most frequent source of information was a discussion with a gynaecologist and a gastroenterologist. In the run-up to childbirth, they would most often turn to a certified midwife. Discussion and conclusion: The literature review and the survey showed that women face fears and worries during family planning and pregnancy, mainly related to the health of their children. Some women therefore make the conscious decision to discontinue treatment, despite being informed and the proven safety of the medication. This is where health professionals have an important role to play, to provide them with quality health care and education with the right information to help them make the right choices for the well-being of themselves and their baby.

• Ključne besede: diploma theses, midwifery, Crohn's disease, ulcerative colitis, pregnancy, neonatal outcomes, birth, breastfeeding