Vloga socialnega dela pri starših otrok s prirojeno srčno napako : diplomsko delo

Flisar, Maja (avtor), Videmšek, Petra (mentor)

V okviru diplomskega dela raziskujem pogled staršev otrok s prirojeno srčno napako na socialno delo. Zanimalo me je, kakšna je vloga socialnih delavk v procesu zdravljenja in katerih izboljšav bi si starši želeli v okviru socialnega dela v zdravstveni dejavnosti in zunaj nje. Raziskovala sem še stiske staršev otrok s prirojeno srčno napako in iskala odgovore na vprašanje, kaj bi potrebovali, da bi bile te stiske čim manjše. Zanimalo me je tudi, kdo so pomembni podporniki staršev in kakšna je njihova vloga. V teoretičnem delu pišem o družini in starševstvu kot o temeljni celici otrokovega življenja, o prirojenih srčnih napakah in vplivu prirojene srčne napake pri otroku na življenje staršev. Ob koncu teoretičnega dela se usmerim na socialno delo z družino in vlogo socialnega dela v zdravstveni dejavnosti. Rezultate raziskave sem pridobila v obliki intervjujev s starši otrok s prirojeno srčno napako in jih v empiričnem delu tudi predstavila. Sodelujoče so najpogosteje zaznavale negativne občutke ob seznanitvi o otrokovi prirojeni srčni napaki ali po njej. Izpostavljale so potrebe po pogovoru in informacijah. Podporniki intervjuvank so bili predvsem družinski člani in partner, hkrati pa tudi drugi starši otrok s prirojeno srčno napako. Vloga socialnega dela pri sodelujočih je bila majhna ali pa je sploh ni bilo, so pa intervjuvanke izražale željo po večji prisotnosti socialnega dela v bolnišnicah in željo po večji informiranosti o socialnovarstvenih storitvah. Rezultati raziskave kažejo na potrebo po večji prisotnosti socialnega dela v bolnišnicah, smiselno bi bilo uvesti multidisciplinarne time, ki še vedno ostajajo bolj na ravni teorije kot prakse.

• Jezik: Slovenski jezik
• Ključne besede: starševstvo, prirojene srčne napake, socialno delo v zdravstveni dejavnosti, socialna mreža
• Vrsta gradiva: Diplomsko delo/naloga
• Tipologija: 2.11 - Diplomsko delo
• Organizacija: FSD - Fakulteta za socialno delo
• Kraj izida: Ljubljana
• Založnik: [M. Flisar]
• Leto izida: 2023
• Št. strani: 108 str.
• PID: 20.500.12556/RUL-149417
• UDK: 364.4:614
• COBISS.SI-ID: 199631875
• Datum objave v RUL: 07.09.2023

FLISAR, Maja, 2023, Vloga socialnega dela pri starših otrok s prirojeno srčno napako : diplomsko delo [na spletu]. Diplomsko delo. Ljubljana : M. Flisar. [Dostopano 5 maj 2025]. Pridobljeno s: https://repozitorij.uni-lj.si/IzpisGradiva.php?lang=slv&id=149417

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: The role of social work for parents of children with congenital heart disease

Izvleček

In the framework of this thesis, I explore the view of parents of children with congenital heart disease on social work. I was interested in the role of social workers in the treatment process and what improvements parents would like to see in the context of social work in the health sector and beyond. I also explored the pressures suffered by the parents of children with congenital heart disease and what needs they perceive would help them to reduce their distress. I also wanted to know who the important supporters of parents are and what their role is. In the theoretical part, I write about the family and parenthood as the fundamental unit of a child's life, about congenital heart defects and the impact of a congenital heart defect in a child on the life of the parents. At the end of the theoretical part, I will focus on social work with the family and the role of social work in health care. I obtained the results of the research through interviews with parents of children with congenital heart defects and presented them in the empirical part. Participants most frequently perceived negative feelings when or after learning about their child's congenital heart defect. They stressed the need for information and conversation. The interviewees' supporters were mainly family members and partners, but also other parents of children with congenital heart disease. The role of social work was little or non-existent among the participants, but the interviewees expressed a desire for a greater presence of social work in hospitals and a desire to be better informed about social welfare services. The results of the survey point to the need for a greater presence of social work in hospitals, and it would make sense to introduce multidisciplinary teams, which currently remain more at the level of theory than practice.

• Ključne besede: parenting, congenital heart disease, social work in health care, social network